Program

The Organizing Committee of the European Neurofibromatosis Meeting 2020 is pleased to announce the NF2020 preliminary program featuring keynote and plenary lectures on NF1, NF2 and Schwannomatosis alternated with parallel sessions for in depth knowledge. Topics include plexiform neurofibromas, cutaneous neurofibromas, cognition and behavior, genetics, quality of life, as well as animal and cellular models and fundamental research.

 

Thursday 10 December 2020

13.00 – 13.05 hrs Opening, by Rianne Oostenbrink and Ton Akkermans
13.05 – 13.15 hrs Plenary: Patient experience, by Marianne de Ranitz – Gobel
13.15 – 13.35 hrs Plenary: Pathofysiology of plexiform neurofibroma, by Luis Parada
13.35 – 13.55 hrs Plenary: Natural history PN, by Ross Ferner
13.55 – 14.10 hrs Interactive Q&A session
14.10 – 14.20 hrs Break
▪ Sponsors
14.20 – 15.00 hrs Parallel session round 1:
▪ Plexiform Neurofibromas / MPNST, by Eduard Serra and Walter Taal
▪ Qol: pain, fatigue, pruritus, by Laura de Graaff and Anna Rosenberg
▪ Cognition and behavior in NF1, by André Rietman and Thijs van der Vaart
14.45 –  15.00 hrs Interactive Q&A session
15.00 – 15.20 hrs Break
▪ Sponsors
15.20 – 15.45 hrs Parallel session round 2:
▪ Orthopedic complications in NF1, by Gert Bessems and Joost Rutges
▪ Cutaneous neurofibromas and dermatology, by Pierre Wolkenstein and TBA
15.45 –  16.00 hrs Interactive Q&A session
16.00 – 16.10 hrs Break
▪ Sponsors
16.10 – 16.30 hrs Keynote: MEK inhibitors current evidence and best practice, by Brigitte Widemann
16.30 – 16.50 hrs Plenary: Surgery for craniofacial complications, by Irene Mathijssen
16.50 – 17.10 hrs Plenary: Radiological monitoring: PET MRI, by Heike Daldrup
17.10 – 17.25 hrs Interactive Q&A session
17.25 – 17.30 hrs Closing remarks of the day, by Rianne Oostenbrink and Ton Akkermans
17.30 – 19.00 hrs Break and sponsor presentations
19.00 – 20.00 hrs Interactive poster session (online chat)
All day Poster sessions

Friday 11 December 2020

13.00 – 13.10 hrs Opening and summary of day 1, by Rianne Oostenbrink and Ton Akkermans
13.10 – 13.20 hrs Plenary: NF2 / Schwannomatosis, patient experience, by Onno Faber
13.20 – 13.40 hrs Plenary: NF2, by Scott Plotkin
13.40 – 14.00 hrs Plenary: Schwannoma Predisposing Syndromes, by Gareth Evans
14.00 – 14.15 hrs Interactive Q&A session
14.15 – 14.25 hrs Break
▪ Sponsors
14.25 – 14.50 hrs Parallel session round 3:
▪ Animal and cellular models, by Thomas de Raedt and Eric Wiemer
▪ Schwannomatosis, by Martijn Malessy and Emmelien Aten
▪ Genetics in NF1, by Rick van Minkelen and Eric Legius
14.50 – 15.05 hrs Interactive Q&A session
15.05 – 15.20 hrs Break
▪ Sponsors
15.20 – 15.40 hrs Keynote: Genetics, by TBA
15.40 – 16.00 hrs Plenary session: Population studies and survival, by Juha Peltonen
16.00 – 16.20 hrs Keynote: Understanding NF through research, by Eric Legius
16.20 – 16.35 hrs Interactive Q&A session
16.35 – 16.45 hrs Break
▪ Sponsors
16.45 – 17.10 hrs Parallel session round 4:
▪ OPG / glioma, by Jaishri Blakeley and TBA
▪ NF2, by Michel Kalamarides and TBA
17.10 – 17.25 hrs Interactive Q&A session
17.25 – 17.40 hrs Late breaking abstract: poster award (presentation of 3 winning posters)
17.30 – 17.45 hrs Wrap up / presentation NF2022, by Rianne Oostenbrink and Ton Akkermans
All day Poster sessions

Saturday 12 December 2020 – Public Day

13.00 – 13.05 hrs Opening, by Ton Akkermans
13.05 – 13.25 hrs Genetics and gene therapy opportunities, by Eric Legius
13.25 – 13.45 hrs Fundamental research, by Prof. Ype Elgersma
13.45 – 13.55 hrs Q&A
13.55 – 14.05 hrs Break

Parallel session 1: NF and Legius Syndrome
14.05 – 14.10 hrs Moderator and chair
14.05 – 15.10 hrs ▪ NF1 MEK inhibitors, by Dr. Brigitte Widemann
▪ Surgery in the treatment of cutaneous/plexiform neurofibroma, by Prof. dr. Irene Mathijssen
▪ Psychological burden of NF1 and coping strategies, by Dr. Shruti Garg and Louise Robinson
15.10 – 15.25 hrs Q&A
15.25 – 15.35 hrs Break
15.35 – 15.40 hrs Moderator and chair
15.40 – 16.05 hrs Public Award
16.05 – 16.50 hrs ▪ Communication: how to tell child, family, work and environment about NF1, by Dr. André Rietman
▪ Good care and professional support for patients in care-management, by Prof. Eric Legius, Dr. Rianne Oostenbrink, Dr. Walter Taal
16.50 – 17.00 hrs Q&A following in live panel discussion
17.00 hrs Closing

Parallel session 2: NF2 and Schwannomatosis
14.05 – 14.10 hrs Moderator and chair
14.05 – 15.10 hrs ▪ NF2 and Schwannomatosis, by Prof. Gareth Evans
▪ Organization of care for NF2 and Schwannomatosis, by Prof. M. Kalamarides
▪ Drugtherapy, by Scott Plotkin
15.10 – 15.25 hrs Q&A
15.25 – 15.35 hrs Break
15.35 – 15.40 hrs Moderator and chair
15.40 – 16.05 hrs Public Award
16.05 – 16.50 hrs ▪ Hearing rehabilitation (CI/ABI), by Prof. J.H.M. Frijns
▪ Schwannomatosis, by Dr. J.L. Groen
16.50 – 17.00 hrs Q&A following in live panel discussion
17.00 hrs Closing

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