Speakers, (co)chairs, moderators

Ton Akkermans

Chairman
Neurofibromatosis Association Netherlands (NFVN)

Emmelien Aten, MD, PhD

Clinical Geneticist
Leiden University Medical Center

Gert Bessems, MD

Pediatric Orthopedic surgeon
Erasmus MC

Dr. Jaishri Blakeley (MD)

Professor of Neurology, Neurosurgery and Oncology
Johns Hopkins University School of Medicine

Dr. Heike Daldrup-Link (MD, PhD)

Professor, Pediatric Radiologist
Stanford University

Drs. Britt Dhaenens

PhD Student
Erasmus MC

Sarah van Dijk, MSc

Nurse Practitioner
Erasmus MC

Prof. Dr. Ype Elgersma (PhD)

Principal Investigator
Erasmus MC

Onno Faber

Co-founder & CEO
Rarebase, PBC

Prof. Gareth Evans

Clinician Scientist
University of Manchester

Prof. Rosalie Ferner (MD FRCP)

Consultant Neurologist
Guy’s and St. Thomas’s NHS Foundation Trust

Prof. Johan Frijns (MD, PhD)

Professor of Otology and Auditory Physics
LUMC, ENT-department

Dr. Shruti Garg

Clinical Senior Lecturer
University of Manchester

Dr. Laura de Graaff (MD, PhD)

Adult Endocrinologist
Erasmus MC

Dr. Justus Groen

Neurosurgeon
Leiden University Medical Centre

Erik Hensen, MD PhD

Otorhinolaryngologist - skull base surgeon
Leiden University Medical Center

Michel Kalamarides, MD, PhD

Professor of Neurosurgery
Hôpital Pitié-Salpetrière, Sorbonne Université

Kimberley Koetsier, MD

PhD Student
Leiden University Medical Center

Prof. Eric Legius

Clinical Geneticist
University of Leuven

Prof. Dr. Martijn Malessy

Professor of Nerve Surgery
Leiden University Medical Center

Prof. Ludwine Messiaen (PhD)

Director, Medical Genomics Laboratory
University of Alabama at Birmingham

Dr. Rick van Minkelen (PhD)

Clinical Molecular Geneticist
Erasmus MC

Dr. Rianne Oostenbrink

Pediatrician
Erasmus MC - ENCORE

Dr. Luis Parada (PhD)

Director, Brain Tumor Center American Cancer Society - Member, Cancer Biology and Genetics Program
Memorial Sloan Kettering Cancer Center

Juha Peltonen, MD, PhD

Professor
Cancer Research Unit, Institute of Biomedicine, University of Turku

Dr. Scott Plotkin (MD, PhD)

Armenise Family - Harvard Professor of Neurology
Massachusetts General Hospital

Prof. Errol Prens (MD, Phd)

Dermatologist
Erasmus MC

Dr. Thomas De Raedt

Assistant Professor / Principal Investigator
Children’s Hospital Philadelphia/UPenn

Drs. Marianne de Ranitz-Gobel

Child and Adolescent psychologist

Dr. André Rietman (Phd)

Neuropsychologist
Erasmus MC, Sophia Children's Hospital

Dr. Louise Robinson

Consultant Clinical Psychologist
Manchester University NHS Foundation Trust

Claas Röhl, Ing. Bakk phil.

President
NF Kinder / NF Patients United / EUPATI Austria

Anna Rosenberg, Bsc

PhD student
Erasmus MC

Joost Rutges, MD, PhD

Orthopedic Surgeon, Spine
Erasmus MC

Eduard Serra, PhD

Researcher, Group Leader
The Institute for Health Science Research Germans Trias i Pujol (IGTP)

Walter Taal, MD, PhD

Neurologist
Erasmus MC - Cancer Institute

Dr. Thijs van der Vaart (MD, PhD)

Neurology Resident
Erasmus MC

Brigitte Widemann, MD

Senior Investigator, Chief NCI
NCI Pediatric Oncology Branch

Dr. Erik Wiemer

Associate Professor
Erasmus MC

Dr. Marie-Claire de Wit

Pediatric Neurologist
Erasmus MC

Prof. Pierre Wolkenstein

Head of Department of Dermatology
Henri-Mondor Hospital (APHP, UPEC)

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