Claas Röhl, Ing. Bakk phil.

After the NF1 diagnosis of his daughter and her undergoing an 18-month chemotherapy at the age of 2, Claas Röhl decided to establish a NF patient organization in Austria in December 2013.

In August 2017 he co-founded the European umbrella organization NF Patients United, that consists of 14 member organizations from 12 countries.

Claas Röhl wants to empower patients to become the driving force in organization of care and research.

Function: President
Company: NF Kinder / NF Patients United / EUPATI Austria