Ton Akkermans is chairman of the Neurofibromatosis Association Netherlands (NFVN). The NFVN is an organization of people who are confronted with all forms of NF and Legius syndrome. The NFVN stands for bringing people with NF together, information provision and, of course, advocacy. The NFVN stands for good clinical care with input from the patient perspective and is an advocate for more attention for the social consequences of NF among its constituencies. The NFVN has 1200 members.
Company: Neurofibromatosis Association Netherlands (NFVN)